This past weekend my family and I journeyed about three hours north to Vermont where a surprise 75th birthday party was being held in honor of my grandma. Overall a good time was had by all until we began the trek home mid-morning this morning. It wasn’t until my dad was lifting me back into the car after our late breakfast at a hole in the wall diner, that the burning started.
At that point, I had probably been lifted close to a hundred times throughout the weekend and spent a fair amount of time in a car. Neither of those things bode well for my legs, even though some sort of pain is my constant companion. So we were about an hour or so away from home and ignoring the pain was no longer working. My dad had stopped at a Cumberland Farms gas station to get a drink when I dissolved into tears.
Because she’s a mother and obviously doesn’t like to see any of her children in pain my step mom offered up some ibuprofen. Through my tears, I attempted to explain that ibuprofen wouldn’t help the fact that my legs felt, and still feel as I write this as if they are simultaneously asleep and on fire.
There is no magic cure for the near constant pain associated with my Cerebral Palsy. This is not a disability for the faint of heart. Today is one of the countless days I’ve had throughout my life where I don’t want to do this anymore. I’m totally over being wheelchair bound. Does anyone else want a turn?