Movies

Do No Harm But Take No Shit

Amidst my morning routine of daily pills, social media checking and steeling myself for the day ahead, my phone rings. It was one of the producers of the documentary I’m in, set to open at Film Columbia festival next weekend. She briefs me on the status of our battle for a venue change; not going well. Why a venue change, because the film club which is screening the movie booked it for the least accessible building in the town where coincidentally I grew up. And are refusing to move the screening. My producer also informed me that a letter written by the board of directors of the nonprofit that helped fund the documentary, to the film club was leaked to the press and is front page news. She asked if I am prepared for and okay with the possibility of more media attention as well as the possibility that I may be photographed being carried into next Saturday’s opening. I remind her that this is my life and notoriety is nothing new. Worst case scenario, I explain, I bring more attention to the problem and our project. The saying goes after all, the squeaky wheel gets the oil. I don’t intend to harm the reputation of Film Columbia nor is any of this written with ill intent; as I think the organization truly didn’t think of the fact that their venue of choice is inaccessible for not only wheelchair users but anyone with a mobility issue. It is the fact they won’t provide a solution once made aware of the problem that I will not stand for.

If you would like to read the news article mentioned in this post it can be found here:

https://www.hudsonvalley360.com/article/film-screening-keeps-out-some-disabilities

Lights, Camera, Action

Anything is possible, at least that’s what I was taught growing up. Deep instilled in me is the notion that can’t isn’t a word and possibility is limitless. That’s why I was thrilled last fall when I was approached to be in a documentary featuring a group of other disabled individuals and the various relationships we form.

Although I am in a romantic relationship with a partner whom I adore and he is mentioned in my segment he isn’t the main focus. Instead, I chose to focus on my relationship with the world around me as I toe a unique line of disabled but really. My family even gets in on the action featuring my niece and nephew (who will surely steal the show) and a very candid interview from my dad that’ll make you want tissues.

It was extremely important to me to do this project because of  how raw and candid I get not only in my segment but also as the narrator throughout the entire film. If you’re in the Ghent, NY area on Saturday Oct 21st I suggest heading to Art Omi gallery for a cinematic experience that answers the questions the world is too afraid to ask. Possibility The Space Between Limits is a conversation with the disabled community you didn’t know you needed to have.