Amidst my morning routine of daily pills, social media checking and steeling myself for the day ahead, my phone rings. It was one of the producers of the documentary I’m in, set to open at Film Columbia festival next weekend. She briefs me on the status of our battle for a venue change; not going well. Why a venue change, because the film club which is screening the movie booked it for the least accessible building in the town where coincidentally I grew up. And are refusing to move the screening. My producer also informed me that a letter written by the board of directors of the nonprofit that helped fund the documentary, to the film club was leaked to the press and is front page news. She asked if I am prepared for and okay with the possibility of more media attention as well as the possibility that I may be photographed being carried into next Saturday’s opening. I remind her that this is my life and notoriety is nothing new. Worst case scenario, I explain, I bring more attention to the problem and our project. The saying goes after all, the squeaky wheel gets the oil. I don’t intend to harm the reputation of Film Columbia nor is any of this written with ill intent; as I think the organization truly didn’t think of the fact that their venue of choice is inaccessible for not only wheelchair users but anyone with a mobility issue. It is the fact they won’t provide a solution once made aware of the problem that I will not stand for.

If you would like to read the news article mentioned in this post it can be found here:

https://www.hudsonvalley360.com/article/film-screening-keeps-out-some-disabilities